myvoice&breastcancer

Jennifer Saunders

2010-07-18T23:37:00.002+01:00

Only recently it was announced by the press that Jennifer Saunders has had breast cancer see:
http://www.telegraph.co.uk/news/newstopics/celebritynews/7878364/Jennifer-Saunders-wins-breast-cancer-battle.html
Another woman I have more in common with! I wish her well and her family.

Happiness matters... so where is it?

2010-07-13T10:38:00.003+01:00

It struck me last week whilst I was at work that many people seemed to be looking miserable and have lost their sense of fun in the workplace. Things can get pretty dull on the treadmill of life. I mentioned this to colleagues and suggested we explored how we could bring back the feeling of happiness and have some fun in our work place/space. Nothing wild or inappropriate just some light relief from the intensity of doing work. Then on the news that night - research has been published with evidence that happy people are more productive and work better!! What a coincidence and how apt I thought. So there we have it happiness matters and to be honest we all knew that; so the challenge is to be mindful and connected to the wonderful feeling of happiness - it takes some working on but is sure to be worth it!!! I am suggesting that work places should consider having a 'Fun Marshall' or 'Marshall's' it could well make a difference - so lets try it?

Any views or comments?

2010-07-08T22:57:00.002+01:00

I am wondering if you would like to share any thoughts or views about my blog and/or anything about breast cancer. It would be great to read them. Thanks

Psycho-social research

2010-07-02T22:32:00.002+01:00

I have learnt recently that Cancer Research UK have decided to fund less perhaps even no psycho-social research. This is a surprise to me as having cancer affects people in more ways than simply physically. With amazing survivor ship results there are unexpected outcomes such as emotional well being or mental health issues or work based health matters etc etc, that need understanding for the greater good so it seems very narrow to cease such funding. Perhaps all those people who fund raise should stipulate the kind of research they would like their money being spent on??? Now that's a thought!!!

Should we have high expectations?

2010-06-19T08:39:00.004+01:00

Someone was cautioned me to be careful in setting high expectations in particular in relation to other people, as 'expectations only set you up for a fall!'. These words of caution were shared in good faith in response to a time when I felt disappointed when a set of expectations did not happen! When I thought about this, my high expectations had been unspoken and I kind of expected others to have the same high standards as myself, but allas this is not always the case. That said, I remain optimistic as I believe most people try and when I see that people try their best, that's good enough for me. This week I experienced such joy and delight when an idea I had came to fruition above and beyond my expectations. A drama performance to raise the profile of patient experiences and how little things matter in caring was part of a conference that coincided with National Carers week - check out:
http://www.nursing.salford.ac.uk/news/newsitem?id=747
Amazing! I am sticking with high expectations and will just manage the outcomes differently, in other words prepare for a soft landing not a fall!!

From the World Cup camp!!

2010-06-14T20:02:00.003+01:00

How many people are like me and exposed to back to back football matches? I don't mind the odd game but we are watching them all, plus the pundits pre-match drivel and post-match analysis!!! Then highlights and re-plays and so on.... o well on the positive side I can escape unnoticed and the roads are quieter. To be honest its nice having something we can all join in and come together on as everyone has an opinion!! It has made me think about all the hype and build up and then how in practice its completely different, there will be surprises and shocks along the way. So much like the cancer journey, somethings can be predicted and others not!!

A good contact and amazing friend

2010-06-08T23:18:00.003+01:00

A good friend of mine - Angela Galvin works with organisations, individuals and projects across the UK to provide creative and sustainable business strategies. Check her out http://www.angelagalvin.co.uk/angelagalvin.co.uk/Welcome.html

Weather makes a difference

2010-06-05T08:46:00.003+01:00

It is true that the weather does make a huge difference to how we feel. Right now its uplifting all this sunshine and blue sky is simply fantastic. Although it is a matter of perspective and about connecting to ones time, place and space to be able to appreciate the glory of the weather. It was only four years ago that we had exactly the same weather in June 2006, a world cup football year and a sense of hope was all around. This time round I can appreciate it much more and intend to enjoy it much more. Not that I am a massive footi fan, it has been inflicted upon me over the years, in fact it is remarkable my knowledge base of the game, so yes I will enjoy the occasion of the world cup and if it brings good weather than I am up for that! O yes bring on the sunshine and feelings of wellbeing.

Coalition Cuts - how will they affect health care?

2010-05-23T23:26:00.000+01:00

We are very close to the big announcement spelling out the coalition government cuts and I am sure that health care will be affected. It could take some time to know how exactly as admin is often the area targeted in the first instance but I am not so sure!!! In trying to speculate the whats and hows I am rather nervous having read some of the news headlines for example the Times on line infers strategic health authorities are to be axed! What will this mean in reality? Uncertain times looming and real cuts will affect everyone.

Evidence for taking Aspirin - more life years???

2010-05-21T13:44:00.000+01:00

Recently it has come to my attention that taking Aspirin can add life years following breast cancer and in the absence of medical advise to take it, I was curious to learn more. So I am doing my own research to find out more. But for now I thought these 3 sources are worth exploring. Interesting that the even the Daily Mail has a feature!

http://www.dailymail.co.uk/health/article-1251720/Aspirin-halves-risk-women-dying-breast-cancer.html

http://www.physorg.com/news185616128.html

http://www.nhs.uk/news/2010/03march/pages/aspirin-and-breast-cancer-risk.aspx

I am back!!!

2010-05-15T09:43:00.000+01:00

Did you miss me??? I visited Australia and got stranded due to the ash... back and thinking of good points/comments/thoughts to add to the blog!

International Nurses Day May 12th

2010-05-15T09:38:00.000+01:00

A great day in the calender to profile all that's good about nursing across the globe! After attending an International nursing conference reminded yet again that the NHS is FANTASTIC and we know nothing about hardship due inability to pay! Most of us whinge far too much, it's shocking hearing people whinge and moan - embrace what we have, care for it and say something positive to a nurse....... it will make you both feel good.

This is a good phrase - SUMO

2010-03-25T22:21:00.000Z

Heard of S.U.M.O? It stands for 'Shut up, Move on' the author is Paul McGee, a life coach...... see
http://www.thesumoguy.com/explained.php
This appeals to me and I am going to find out more, in fact might get the book as I have a long haul flight pending so it could be perfect time to explore his work! Apparently S.U.M.O. means:

Shut Up, Move On does NOT necessarily mean ‘get over it’ or ‘pull yourself together’ (although there may be occasions when both responses are necessary).

‘Shut Up’ means
- to stop what you’re doing
- take time out to reflect
- let go of baggage and beliefs that hinder your potential.

‘Move On’ means
- Tomorrow can be different from today
- Look for new possibilities.
- Don’t just think about it, take action.

SUMO is meant to be a challenging, thought provoking and memorable message.

Which reminds me to say, I may well not be able to update the blog as often over the next few weeks so in advance - forgive me and speak soon. All the best Julie xxx

Good science

2010-03-14T19:17:00.000Z

In looking for information and answers to the questions that concern the individual, it is often hard to find anything that is useful. It is striking how much research originates on issues far removed from what bothers the individual woman and that of her family or carers. Why is this? Is it good science to be so narrow?

Dream as if you'll live forever. Live as if you'll die today

2010-03-06T09:04:00.000Z

It's good to be pulled up by a poignant comment like this - as it is so easy to get sucked up into modern life of rushing about and being consumed by chores - it's not living on a day to day basis! Reality check yourself on a regular basis and never take anything for granted! Keep things simple and live your life minute by minute - be kind to yourself. Sometimes we forget and it is easy (too easy) to displace yourself - keep in mind this phrase!!!

Helping headlines?

2010-02-27T09:36:00.000Z

Recently I was reminded how tricky if can be to find reliable information about breast cancer and how tough it can be to understand what is being said. A good example is how research can be 'headlined' thus creating uncertainty and adding anxiety to those who have the disease. Clearly, a balance is to be had, we want information - that we can trust - and at the same time we want reassurance that the experts (whatever that means!) are knowledgeable and using relevant research to underpin their practice. Below are two examples of how confusing it can all be and that's just the public! The BBC draw attention to the following:

Breast cancer biology 'changing': Lifestyle changes and screening have shifted the type of breast cancers women are diagnosed with over the past couple of decades, research suggests. Check out http://news.bbc.co.uk/1/hi/health/7902372.stm

Third of breast cancer 'harmless': One in three breast cancers detected by mammogram screening may actually be harmless, a study has suggested. Check out http://news.bbc.co.uk/1/hi/health/8143564.stm

A tribute

2010-02-22T09:16:00.000Z

I recently read an obituary of Jane Andrews see: http://www.guardian.co.uk/theguardian/2010/feb/09/jane-andrews-obituary. The story here is of a strong and feisty woman who was critical of the 'pnk and fluffy' symbolisation of breast cancer and confronted this image.

As her friend Rita said: 'Jane set up a website fiercely critical of "pink and fluffy" approaches to breast cancer. Not for her stories about "bravery" and "fighting". In calling for more realistic representations of the illness, her postings spoke for the many breast cancer sufferers who contacted her through the website. Only now are we beginning to hear other voices speaking out against the social pressure on cancer patients to deny their anger and "think positive". This campaign was the culmination of a life devoted to political change'.

I felt so dissappointed that I had not come across Jane's website during my own illness and certainly while she was alive - I still can't locate it! If anyone can - please let me know.

How we see breast cancer is one thing and how we cope with it is another - a balance is required and I can resonate with Jane on many levels. The mantra of being positive and social pressures about how to be are huge and 'in your face', everyone has a view!!! From my perspective how we feel is complex, humans are different and we must not deny difference, there is no one way of being. Jane clearly drew attention to difference.

Happy Poem

2010-02-13T10:20:00.000Z

I came across this poem on a web site for cystic fibrosis and it resonated with me...... have a read

Happy?
How can you ask such a question of me?
Does this disease leave me with feelings of pleasure?
A thousand needles have pricked my skin,
demanding blood
returning poison in the name of health
I've lost friends before I started high school;
said goodbye to loved ones
I met only through their legacies

and you ask if I am happy?

My body betrays me with each breath
sharp stabs to my chest
keep me from bright hopeful dreams
I make decisions you cannot bear to think of
I face ugly truths - you turn your eyes away
blinding yourself with pathetic pity.

happiness is a question asked patronizingly of children

I face my fear every day
raising my sword of defiance and determination
slaying the dragons you didn't even know were there.
I am courageous, I am strong
I have accomplished everything
and paid with my life.

I am joyous, fortunate, fearless
spiritual, solaced, content and loved
don't ask if I’m happy.

By Michelle Compton

Women who inspire

2010-02-10T11:20:00.000Z

According to Maggie Richards, Contributor, MSN Life & Style she states that 'Everyone needs a role model. Someone brave to lead the way and make us want to, dare to, pursue our dreams. Or simply help feel good about ourselves just as we are' (01/02/2010 17:16 Top 10 inspirational women). The news item on MSN celebrates 10 wonder women who, according to Maggie Richards, inspire us!

Interestingly Kylie Minogue is amongst the top ten women that Maggie has selected. Of Kylie it is for her contributions to music but also following BC in 2006 whereby she has raised awareness of the disease. I think we all do this in our own ways and yes high profile women have scope and the resources to help even more - what do you think? Who inspires you? Who is your role model?

I admit Kylie helped me at times although even more it was all the anonymous and kind women I chatted to on the Breast Cancer Care web site (discussion board) that really inspired and energised me..... amazing!!!

Follow up

2010-02-05T17:16:00.000Z

There seems to be divided views about the value and benefits of follow up after cancer. The medical evidence suggests that there is minimal value and benefit. Even mammography is being questioned. Yet every woman I speak to would disregard such evidence, as for them enormous benefits exist in being seen at regular intervals. For example the psycho-social benefits alone are highly valued and appreciated. I think that the people or sources of evidence that have placed such doubts on follow up have not taken into account women's views and the psycho-social benefits at all. What do you think????

Ruthless & Brilliant

2010-01-24T12:15:00.000Z

This is a really interesting radio 4 production by Jenni Murray and I recommend.. check it out

http://www.bbc.co.uk/iplayer/episode/b00pn4c5/Ruthless_and_Brilliant/

Cancer survivorship

2010-01-12T20:19:00.000Z

How amazing to bring in the new year with some research that highlights how little is known about cancer survivor ship. If you visit the BBC web site at http://news.bbc.co.uk/1/hi/health/8429995.stm you will see the article on 'Cancer survivors 'facing neglect'. In my view this is a long time coming as so many people suffer various health issues after treatment ceases and don't know whats going on! I know that so many people simply 'put up & shut up' with many of the short and long term side effects of cancer treatment, often thinking they are ungrateful to help seek or complain. It does not have to be like this. I am optimistic that such publications will stimulate discussions and more research that will begin to seriously consider the impact of cancer treatment as people survive longer. Comments welcome.

At last cancer survivorship gets attention

2010-01-06T21:38:00.000Z

How amazing to bring in the new year with some research that highlights how little is known about cancer survivor ship. If you visit the BBC web site at http://news.bbc.co.uk/1/hi/health/8429995.stm you will see the article on 'Cancer survivors 'facing neglect'. In my view this is a long time coming as so many people suffer various health issues after treatment ceases and don't know whats going on! I know that so many people simply 'put up & shut up' with many of the short and long term side effects of cancer treatment, often thinking they are ungrateful to help seek or complain. It does not have to be like this. I am optimistic that such publications will stimulate discussions and more research that will begin to seriously consider the impact of cancer treatment as people survive longer. Comments welcome.

Happy and Healthy Christmas

2009-12-27T09:42:00.000Z

I genuinely wish you all a Happy and Healthy Christmas . Stay calm and remember to enjoy the moment and there will be plenty I am sure. Lol Julie xxxx

2 soups - best laff ever

2009-12-21T22:17:00.000Z

I highly recommend for a really good laugh that you watch 2 soups ...Julie Walters classic, written by VW - hilarious! Tonight I watched the sketch and was reminded what an amazing piece..watch it I guarantee the best laugh ever.

I am back!!!

2009-12-18T11:13:00.000Z

Hello readers....?? I am back. You might have missed me or not, but quite frankly I had a huge job to do which meant focusing on the task 100% and thus I was selfish with my time. I know you can forgive me, but hey I learnt loads about being selfish... number 1 it's okay. Perhaps an unfortunate word and applied mostly with negative under tones, this is not how I apply it. When we need all our energy and thoughts for big/huge jobs then it is the only way forward, think number 1 first and foremost. Other people understand and if they don't well tough on them, we know what it's like!!!
Care for yourself and dedicate time to yourself.. go for it.

That time of year again.....

2009-10-19T17:11:00.000+01:00

It's getting to that time of the year when the annual check up is due and despite the fact that there exists some evidence to suggest there are limited clinical benefits to follow up after cancer, the psycho-social ones are massive! I have yet to meet a woman who is cool to have no follow up care. Professionals and managers have no idea what relief and meaning follow up can offer people and their families, it's huge. This said I am not that excited about moving from annual checks to ones that occur every couple of years!! But I will handle it and if this does happen will regard it as progress for me. Reassurance is a massive boost and that's a big part of the follow up really... no harm in that!!!

Benefits of massage

2009-10-11T15:42:00.000+01:00

Yesterday I had a spa massage treatment which reminded me how deeply relaxing this can be and why I should indulge in one more frequently. Therapeutic massage, whether aromatherapy, therapeutic or by beauticians is so amazing at removing tension and stress held in our muscles, the sense of calm and release of these tensions is instant but moreover it can last for days. Interestingly, I read this week some research on cancer survivor ship and the benefits of massage, this was in an academic journal and what this paper brought home to me was the lack of insights into understanding what helps women as they embark on their survivor ship journey's, massage is one therapy that can provide huge benefits. Being able to zone out and have a sense of peace and calm in our busy lives is crucial, so I say go for it and invest in the self and book a massage, you'll be amazed!

Ordinary people inspiring others....

2009-10-04T10:17:00.000+01:00

I hope that you agree that in our everyday lives we come across people who make the most amazing comments on the ordinariness of illness/disability/caring etc, often they don't mean to inspire but they simply do. Just lately a couple of people have inspired me to think about how the most basic things should be embraced and cherished. For example having people close to you, either family or friends is a gift one that ought not to be taken for granted, investing time in our loved ones is time well worth spent. For me having a laugh is a basic need, to laugh everyday is my goal and to share that with others is fantastic and uplifting. It is the energy and feel good factor that I adore that comes from being with people, feeling happy and laughing. It seems obvious but when you look around so many people seem miserable, low eb and unable to hear and see the amazing things that are around us. Only the other day a couple with severe health issues said to me that if they have each other - they have everything - if they have a laugh each day - then life is good! I felt inspired and for the rest of the day I did not moan or whinge or think in a negative way.......listening to the things that ordinary people say as they handle illness is truly inspiring.

Empty nest syndrome

2009-09-26T16:41:00.000+01:00

I am about to experience life at home without my sons, as my youngest ventures off to University it will be just me and my hubby.... home alone!! It has struck me that we need to plan things so that we make the best use of our time. In a way we were able to lay down some good roots and habits during my illness , like exploring what's on our door step and discovering that we don't have to go far to have great views and pleasant walks. I am not going to let the empty nest syndrome plummet me into low spirits I will use this time to re-visit my bucket list!!!

A new chapter

2009-09-20T22:06:00.000+01:00

It is this week that my youngest son leaves home and starts University, my hubby and I will be home alone!!! On the one hand it's very exciting, much to plan for and a new chapter in his life and ours. However, on the other hand it is going to be a challenge adjusting to the fact that there will be just the two of us...... where have all the years gone??? It is amazing how fast time goes by, it only seems like yesterday that our sons were little boys and now they are young men!! I know that we not alone as so many parents face the same thing and are preparing to 'let go' and move on to the next phase or chapter in life. Handling change, uncertainty and the new chapter is going to be interesting but I know that I can do it and at the same time I will learn something new..... it's all about discovery. In fact this week at work I will be meeting new students who have chosen to embark upon nursing and together we will be exploring new things and making discoveries.

The Plant way of taking control

2009-09-13T23:38:00.000+01:00

Jane Plant, a woman who had bc and designed a healthy food programme to help control her cancer has written books about it, has much to offer people. For me the Plant programme helped in giving me a sense of control and offered choices about foods, drinks and use of plastics that can improve outcomes for people with breast and prostate cancers. It's fairly simple to follow and the benefits are plenty. It's worth considering so take a look and see for yourself.......www.JanePlant.com

Risk and blame

2009-09-08T10:19:00.000+01:00

Just managed to listen to a very interesting debate on Radio4 Woman's Hour - check it out:
http://www.bbc.co.uk/radio4/womanshour/03/2009_36_tue.shtml
I particularly liked the debate regarding notions of risk and how blame plays a role, especially in relation to media reporting!!! Food for thought...

Demanding patients

2009-09-06T08:41:00.000+01:00

Just spent time on a hospital ward with a family member and was reminded how intolerable some people can be, demanding this and that from busy staff. Thinking they are the only person on the ward or the most important and ringing the bell constantly - seeking attention, the wrong kind!! My relative told me there were quite a few people waiting for day surgery and time was ticking by, this guy in the next room was furious to have to wait. The nurses explained that it was the surgeon who had been delayed and that the knock on was affecting everyone, not happy he persisted in being rude and demanding to the nurses...... other patients were witness and found this guy v v annoying. It's tough out there and nurses have a lot to put up with!!!

Shame on Nursing

2009-09-01T08:18:00.000+01:00

Following the media exposure of the patients group report on poor nursing care and some (small %) below par nurses, I felt pretty sad that nursing had come in for such a negative press. In attempting to seek out a balanced view I emailed radio4 today programme and discussed with colleagues the state of nursing..... wondering if we could defend nursing? In fact more people agreed nursing can be poor suggesting that we should be ashamed that such poor nurses are allowed to be out there!!! Many examples have been brought to my attention regarding awful care e.g. Prof Christopher Johns paper on his dying mother - a story of caring shame paints a damming picture (sage publications online) - I certainly cannot defend poor care!!! It is a shame that some people experience poor care and management in my view should take responsibility as in my mind there is a connection - cutting costs and getting things on the cheap has a big role to play here - there is shame in that too!

What a coincidence???

2009-08-24T15:22:00.000+01:00

After writing my blog I sat down to relax with Saturday's Guardian only to discover an amazing but sad article about health care in USA and the impact of no insurance or money to pay!!!
Go check the details out http://www.guardian.co.uk/society/2009/aug/21/healthcare-provision-us-uk. Good luck to Obama he has my support on this one.

Feel good factor and good old days of nursing way back when

2009-08-22T08:21:00.000+01:00

Forgive my absence for the past few weeks I have been busy charging my batteries ready for September's workload!! I find the blue sky of summer and radiant sunshine just the ticket to give me the feel good factor, so off to Portugal I went only for a week. I stayed with a friend who I started my nurse training with way back in 1974!! We always reminisce about the good old days of nursing and caring for the sick, for which we always feel was of a high standard. We both spent time working in the USA after qualifying and we talked about how shocking it was to experience USA health care compared to NHS. The impact of money and peoples ability to pay for health care was a huge culture shock, one that we could not understand or agree with. Imagine a diagnosis such as cancer and the drain on your resources as you try to cope and receive treatment..... something that many of us in the UK have no comprehension of - thank goodness. So it got me thinking how much easier life can be with the support of the NHS and the great people who work in it!!!

Loving my veg garden

2009-08-05T19:55:00.000+01:00

I decided to have a go at growing my own veg - not bad actually the spuds have been the easiest and at last the tomatoes are coming along... fantastic! I thought it would be good fun but also healthy and its amazing how it feels to eat your own produce. I am seeking tips on carrots and green beans - mine were rubbish. Next year will be a serious yield as we have cleared out loads of space for the crops!!!! Very healthy indeed.

Living and Surviving

2009-07-26T16:01:00.000+01:00

I wonder how people after cancer feel about being termed as a 'survivor'? The first time someone said it to me I was not certain it kind of made me feel uncomfortable, for no particular reason just a weird term! But as time goes by I realise that living after cancer can have its challenges, on the one hand it is fantastic to have been treated and to feel well, on the other hand it's a reminder and a distinct label, one that sticks. Recently I discovered that Breast Cancer Care are doing more research into life after cancer and that's good in my book. Maybe insights into survivorship will be useful and helpful to many people - I hope so

Keeping things in perspective

2009-07-20T11:10:00.000+01:00

The media of late has been running stories about breast cancer and suggesting people can be mis-diagnosed and that mammography has its faults ... this could all be true. But the key thing is to encourage women to listen to their own bodies and be taken seriously how they report such changes. There is not enough evidence in my mind of self-reporting and self-diagnosis and this perspective should be considered, even here things are missed and women can be fobbed off!!! For example women attending their local GP practice concerned about breast changes can be labelled the 'worried well' and told to go away.. based on what? We need to keep things in perspective and listen to women when they report concerns.... fear is a huge factor here and can be compounded by poor experiences with health care and practitioners, so I would urge people working on the front line to be thoughtful and non-judgmental in a negative way.

Sad loss of a Charlies Angel

2009-06-26T15:28:00.000+01:00

I feel so sad that Farrah Fawcett aka Jill Munroe a member of the dynamic trio in 70's cop show - 'Charlies Angel' has died! She was iconic in particular on hair do's - loved that style in 70's 80's - she influenced many a style I had trying to mimic that big hair.... no longer with us, sad, very sad.

Caring for the 'self'

2009-05-20T10:48:00.000+01:00

It's nearly 3 years since that horrid day in June when I was given the bombshell news.... and as I reflect back I am struck by a few things. One I will always be grateful for the amazing care that I had 'in treatment', a shining example of the NHS at its best. Also, through the experience of having had cancer I am proud of myself for being so resilient and positive. Linked to this has been the insights I have gleaned since treatment ceased, its a shock when all those hospital trips stop and your alone! In fact you are 'left to get on with it'... well that's been my experience. Even when lymphoedema arrived, I listened to my body and pro-actively sought help.... but I am concerned that many women don't know where to go after treatment ceases and/or know what the 'norms' are following treatment.... moreover do professionals know how we feel and what kind of things we encounter following treatment? I have no problem with caring for the self and managing my own health but to be honest, it seems a bit extreme to go from intense treatment to nothing! Views welcome .......

Happy International Day of the Midwife!

2009-05-05T17:42:00.001+01:00

Feeling fit

2009-04-26T20:16:00.000+01:00

Been out for a long and hilly walk today and it struck me how much fitter I am, must be the yoga! It is so important to try and get fit and to stay fit.. little things help and just keep going is my tip.

Using my VOICE

2009-04-20T10:01:00.000+01:00

Last year I became a VOICE for Breast Cancer Care and recently applied to offer my service user perspective in a more formal way. After seeing an advert with Breast Cancer Care for their Service User Research Partnership, I applied and the good news is I have been appointed!
This is something I hope will enable me (along with others) to provide a perspective on having breast cancer and the reality of having treatment etc. I am really excited and if you have any comments let me know.....

More light

2009-04-06T15:31:00.000+01:00

I am loving the lighter nights, makes such a difference.........

Feeling good

2009-02-19T18:26:00.000Z

I have the feel good factor this month as it is exactly 2 years ago this month that I got the 'all clear'! Amazing and much to celebrate... not just now but always... life is good and I am feeling good. We have lighter nights too which always has an impact on my well being! Spring is round the corner too, can't wait!

Getting rid of rubbish - De-cluttering

2009-01-31T10:05:00.000Z

I feel really cleansed this week after sorting out a load of rubbish from inside the house and passing it on to a good cause. Clothes, shoes, magazines etc basically all the things we don't use anymore were selected for the big clear out. My sons attacked their rooms and the mountain of clothes and unwanted bits was huge. The charity shop benefited as did I friend who is raising money for an overseas project - it felt great! The impact of cleaning up and having less is massive, we wonder how this happens all this accumulation of so much 'stuff'? Good habits, like when you buy new get rid of the old springs to mind. I am going to make a concerted effort to resist buying anything unless it is absolutely needed. We shall see.....watch this space...

Setting goals

2009-01-24T21:10:00.000Z

It can be really useful to set some goals - it can really motivate you and give you the feel good factor!
I recommend choosing 3 ..
1. Simple and easy to do, something that involves minimal effort ..like cleaning out a draw or cupboard, a practical goal
2. Choose something challenging or exciting, it might take some planning and effort, but it is possible e.g. saving up for a holiday, it might be something that you have had in mind for sometime and kind of put it off
3. Final one is something that you have been putting off and you could do it but in the past you have avoided it like learning a new skill e.g. learning to swim, cook or stopping a habit
Good luck

I am very pleased about free prescriptions

2009-01-20T23:10:00.000Z

Good news for people with cancer from now on we are to be exempt from prescription charges!!! I am very pleased indeed. Although I am considering to donate the savings to a suitable charity e.g. breast cancer care. A lesson learnt from the Kevin Spacey the film 'Pay it forward'.

Feeling good

2009-01-14T21:51:00.000Z

As we enter another year I feel really good and bright about the future. I have loads of confidence about my health and feel that 2009 is going to be amazing.. I can sense it!!! The scene was set at the end of 2008 when I found out that I had won a national award to complete my PhD studies..... what an ending to a year! I am so excited and might not have the time and energy to write my blog.... so forgive me for this.

Happy New Year

2009-01-11T00:03:00.000Z

Here's to a fantastic 2009!!!

The big check up!!

2008-11-06T09:31:00.000Z

It's amazing how quick it comes round the 'check up' appointment, mine was last week with the oncologist. I have to say that I was incredibly nervous and I had allowed the anxiety to take a hold over me. On the one hand this is a normal response but on the other hand it is vital that I find a way of handling such situations so that the creation of any negative energy is reduced!! Quite frankly I was ratty and snappy with my hubby and sons... which is unfair really as I now feel a sense of regret... which is something that I had promised myself I would not do.... hurting loved ones is part of the ups and downs of life, I know that, but hey having checks up are good events and I feel special to be having this time with the experts .... seeking ways to stay calm and collect are a priority for future check-ups. I am still waiting for the results of mamo' but feel clam and relaxed about the outcome. So with some reflection and personal insight I have learnt and made a plan for the future!!!

October - Pink Month

2008-10-21T10:14:00.000+01:00

October is now the month to be breast cancer aware and to mark the month pink is the colour! This Friday is wear it pink day - so go on wear something pink to show your support. I also feel we should think positive and send out positive energy all day... .. the news is doom and gloom and this can be a miserable time of year, but I think positive thoughts can be liberating and others can sense the vibes, so do pass on that positive energy - if nothing else you will feel good!

Three Simple Goals

2008-10-12T00:25:00.000+01:00

A very useful tip - read on

Somehow, almost without my noticing it, we've edged into October. For many of us the summer holidays are a distant memory - we're back at work and life is rushing by with its usual relentless pace allowing little time for focus and reflection. The days are getting shorter and before we know it Christmas will be here and with it the end of the year.

That's why this is an ideal time to sit back and do some planning for the last quarter of the year.

Some years ago I was a participant in a coaching Mastermind Group and I remember Pam Richarde, the leader of the group, asking us this question: "Looking forward to December - what do you need to do in the next three months to feel that you've reached the end of the year with a real sense of accomplishment?"

It was a question that really made me think - and it's clever in that it makes you think yourself forward to the end of the calendar year and to consider how it would feel - and what would be different - if you had that sense of accomplishment.

Here's a different way to think about the same question:

Step 1. Write down three goals that you feel would significantly improve your life - personally and/or professionally - in the next 90 days.

Step 2. Once you've decided on your goals, divide each one up into smaller action steps and give each step a start date and a finish date. Don't forget to leave space for a tick box so that you can tick each step as you complete it - always motivating!

By doing this simple exercise you should end up with a focus and an action plan for the next three months - taking you into December with a satisfying feeling of accomplishment.

By Annabel Sutton, BA (Hons), PCC Professional Certified CoachAuthor of '52 Ways to Change Your Life'

My 5 minutes of fame!!

2008-09-29T17:06:00.000+01:00

Hey, I am thrilled to have been asked to Chair a debate at the screening of a new file Born - see:
http://www.museum.manchester.ac.uk/whatson/exhibitions/birth_rites/
or/and
http://www.birthrites.org.uk/index.php?id=320
This work is a collaboration between artists and health professionals in relation to birth....our entries into the world! Should be interesting. For me I was honoured to have been asked to do this and its my 5 minutes of fame - o yes.

Trouble with the NHS??

2008-09-28T19:42:00.000+01:00

I listened the other day to someones story about their experience of the NHS and it was horrendous. I couldn't believe my ears, some of the staff were rude and totally uncaring.... despite asking politely for help and seeking only basic care to help them to get better, a daily battle had to be fought and unnecessary energy had to be dispensed to ensure things happened that should have happened!! This story made me feel so sad but at the same time I felt incredibly lucky as this had not been my experience of the NHS. The reverse in fact. To be honest there were some blips - a few people with attitude - but overall my contacts with nurses, doctors and others were fantastic. I did on a few occasions spell out exactly what I was expecting, in the kindest of ways, in other words I was assertive but as far as I can gather my approach caused no problems. From my perspective the NHS worked well for me and my family.. thank goodness. The trouble is ... the NHS is huge and the volume of people working within it is massive, managing things is a challenge and having high standards of inter-personal skills and ability to interact with humans can be low down on the managements list!!

Fading memory

2008-09-06T16:08:00.000+01:00

I have been wondering when it is that the memory of having had breast cancer will fade and the treatments will be less vivid in my mind??? Of course I know now that this is my experience and identity but I get flashbacks and they take me by surprise often making me feel scared all over again! The facts are fine and how I handled the whole things is fine but the thought of being ill again fills me with dread..... I don't share this much with family as it scares them and why speculate...... it is a matter of balance and getting things into perspective. I am very strong but at the same time I am human and so need to be kind to myself and give myself permission to be... in time the memories will fade. Does anyone else have comments?

Stay bright

2008-08-28T21:20:00.000+01:00

What a terrible summer! Rain, damp and grey skies but don't let that get you down. We have fantastic memories of bright days just need to recall them. For example I have saved some wonderful pictures of blue skies and bright sunnny days on my mobile phone (I am a novice techno user) to cheer me up when the weather is foul and it sure does help. Try it out!

Forgot to tell you this....

2008-08-04T19:46:00.000+01:00

On the 5th May I shared with you that I had successfully 'walked the walk' the Twilight 10k walk for Genesis - the Breast Cancer prevention Charity based in Manchester see: http://www.genesisuk.org/pages/About-the-walk.html

Well I forgot to tell you that I raised £65!!! good eh?

A huge thanks to all those wonderful and kind people who sponsored me and choose to help Genesis.

Some facts

2008-07-24T22:43:00.000+01:00

This is an excellent summary of some facts related to breast cancer by the BBC - take a look via the following link:
http://news.bbc.co.uk/1/hi/health/medical_notes/3244315.stm

listening to lyrics

2008-07-20T14:29:00.000+01:00

I love music and find many 'tunes' uplifting but it has only been more recently that I have really listened to the words/lyrics. Normally I simply listen to the tune and it was through talking to my sons about what it is that we hear when music is played, that I realised how much I was missing out with music. I now listen to the words and what a difference it makes!! During my illness I found enormous comfort and support from this new skill of listening to lyrics and in fact I printed off some lyrics to read when I felt miserable or down in the dumps. Try it and you will be surprised...it works and makes you happy.

The great EMPLOY challenge - check it out

2008-07-08T21:23:00.000+01:00

I can't believe it this is a really good charter for supporting women in the workplace.
Designed by Breast cancer care see:
www.breastcancercare.org.uk/employ

Tips for work

2008-07-07T09:08:00.000+01:00

Remember I promised to share some tips on going back to work, well the other day I was reminded of a couple of important things:
- Don't underestimate the journey to work , it can really make you tired! Take into consideration the impact of your journey, not just the actual travel time but also the mode of transport. For example driving requires a lot of concentration which can result in feeling tired upon arrival! Whatever mode of transport you choose remember to add in extra time and if possible travel with some one else it can help to feel more confident and relaxed.
- Work at your own pace and listen to your body. Most employers are supportive in phasing you back to work but if you are self employed then try to phase yourself back gently. Write a simple and achievable job/task list for the day, it feels great to be able tick off each job/task and the feeling of success is amazing but it's important to keep the list to the minimum. Set yourself up to succeed and not to fail.
- Plan your food and drinks, take water and drink often. I prefer to take my own food these days including some fruit for snacking. It is really important to stop working and eat in a relaxed and chilled out way. Your entitled to have a break and a proper break does rejuvenate you!
More tips to follow - would love your comments

Things look different now

2008-07-02T22:39:00.000+01:00

It's quite amazing how so many people say things like 'I bet you look at life differently now?' or 'having cancer puts life into perspective' and yes I agree this does happen. It is certainly true that the way you see things alters. Enjoying the simple things in life and embracing the moment - all of that for sure. But really I would say, being up beat and positive has really helped me, people who are glum and miserable, I confess, really annoy me. I know I should try to be tolerant and non-judgemental but hearing people winging irritates me so much more than before. The classic modern phrase 'I am tired..' absolutely winds me up... I think back to having chemo and the immense fatigue ... that's being tired. Why people opt to moan and winge about nothing makes no sense - is it a British thing or what?
I know that I am very lucky that my treatment has worked, but for me it has only fully worked if I embrace life, use my energy in positive ways, laugh a lot and seek to feel happy with my lot!

Try yoga or ???

2008-06-21T18:04:00.000+01:00

I started yoga classes within a few weeks of my diagnosis and have kept going ever since. I find it very relaxing; I attend 2 very different classes per week, one being slower with meditation and the other much more energetic - both do the trick! It is really worth exploring something like this i.e. something for YOU.. you 'time' is really important and I have found yoga has helped me to learn how to switch off.... I always found it hard before, my mind would be full of stuff and the notion of relaxing my mind was ailien. But with practice I am a whizz at it and highly recommend it - have a go and try it, it's well worth it!

Back to work - it's not that simple!

2008-06-14T14:36:00.000+01:00

Going to back to work was something I was deeply committed to and the thought of returning to work acted as a great motivator during treatment BUT the transition has not been that simple! Far from it; over the next few weeks I will explain with some good examples of what to consider and things to prepare for - watch this space!
I have to say the professionals and even breast cancer care web site, offered minimal tips or guidance. My oncologist said ' it will take you at least a year... so be aware' and that was kind of it really..... left to get on with it. I am not winging here as I am more than thrilled to be back at work. However, being aware of the pitfalls, blips and issues could help other people in similar situations. Like energy levels, this is something we all take for granted. What surprised me was that on arrival at work I was shattered due to driving, all my energy had gone into concentrating on the traffic and driving my own car- this impact upon my energy levels I noted early doors and took action quickly. I spoke with my manager and with support was allowed to arrive and leave work after the commuter traffic - great. This was only for a short while but made a big difference.

Complimentary therapies - try them they are fantastic

2008-06-08T22:33:00.000+01:00

I remembered the other day how complimentary therapies really made the difference during my treatment - I had loads! Hypnotherapy to help with relaxation during chemo, reflexology for the feel good factor and acupuncture to help with hot flushes, sleep and pain. They really made the difference! In fact I cannot emphasise how fantastic they made me feel and how they helped me to accept treatment. The hospital where I had treatment - Christies - provides this service free of charge and I am sure many other places will have such a service, just ask and try it!

Having trouble commenting?

2008-05-29T08:36:00.000+01:00

If you are having trouble commenting on this blog, then please email me at:
ju_jurez@hotmail.com
Cheers xx

Giving bad news

2008-05-27T17:01:00.000+01:00

It is coming up for my 2 years anniversary of the bc diagnosis and I am feeling good.. very good..in comparison to that fateful day when my whole world collapsed around me. In fact, I am positively marvellous and so full of energy I even surprise myself some days! I am so looking forward to the day when I completely forget the actual date and skip over it - like forgetting a birthday - although I don't see having had bc as negative per se but the day I was given the news was horrendous. If you already know this forgive me for repeating. It was June 7th 2006, I attended the hospital 'one stop' clinic alone, my choice as I thought it would be nothing and as this was a suggested precautionary visit by my GP why not go it alone. Anyway, I am hard, from Yorkshire, can deal with anything!!! After various tests, biopsies (ouch they hurt) and examinations 3hours have passed and I am called into the see the doctor. One of the first things he said was ' who is out in the waiting room?' I said 'lots of women, some came after me and others since'.. I did wonder why he wanted to know about this.. anyway he then said ' no, no what I mean is who is with you?' 'O, no one' I said. He then looked uncomfortable and proceeded to say he had bad news, it was serious, I had breast cancer.....there was a nurse in the room whom I had not seen before, she just sat there and staring at me., I thought her presence was a bit odd. I was sure they had mixed me up with another patient and I asked them to check and double check and that they had the correct file. They had and it was true. O, my I was so sure they had made a mistake I thought ..ok I will go along with them for now..... I opened my work diary to arrange admission for surgery looking for a day that fitted into my work schedule....... what? Then I just broke down crying, screaming, swearing and unable to breath... this was so not happening, but it was and to me. I remember saying ' I am such a nice person, I have lots of friends, a good loving family..... I had plans, big plans, things do and see.... why could it not happen to some scumbag?' The next few hours are a complete blurr to me, I know that I drove home and began telling everyone......... I will talk more about this next week. I look back now and think what have I learnt? How much I have achieved and how well I was supported - amazing. Apart from writing this blog, for which I feel committed as a way to help others, I would not be recounting this day in so much detail, except that I can see the funny side and feel it is such a tough job to give bad news.... but there is a good and bad way!!! Mine was good.

Why wait so long?

2008-05-20T09:12:00.000+01:00

I have been reminded of late just how common and prolific breast cancer is amongst the people I know; a close friend has had a scare but thank goodness after more tests she has had the good news that she is fine. Such a great outcome but it is not the case for many others. One of the worst things for me during the journey of breast cancer was the inflicted waiting periods that follow the tests and operations..... for the professionals saying 'we will see you in 2 weeks with your results' is simply a daily mantra but when your on the receiving end of this comment then waiting this length of time can be purgatory. Many women have said to me that this was the worst time for them, their imaginations would run wild, people would be insensitive and share a doom and gloom story about someone they knew, they would loose sleep, were unable to switch off and put it to the back of their mind - a very difficult situation to be in! In fact, I wonder why it is 2 weeks, why not 1 week or 10days??? Is it due to the sheer volume of tests or poor administration within the the service... I don't know the answers but would like to have some insight as to why and even challenge this traditional waiting period. What do you think?

You've got to laff!

2008-05-11T14:58:00.000+01:00

Having a good laugh can really lift your spirits even when things seem gloomy and miserable. For me looking for the funny side of cancer really helped me to handle the whole thing. For example when I lost my hair (hated being bald!) during chemo, I noticed that the wig boxes had names on the front of the box, how lovely I thought; the wig I choose was called Sandra. So Sandra became my code word for 'wig' and this strategy got a lot of laffs from my friends and family. It helped me to be more positive about wearing her too and I felt quite attached to her in a bizarre kind of way. I have told other women about this and they have told me that it helped them to cope with hair loss, which is great feedback. I know that it is tough going but having a laugh really gives you the feel good factor .... even for a minute it is so worth it!!!

I did it!!

2008-05-05T11:41:00.000+01:00

I feel so chuffed with myself, I did the twilight 10k walk last night for genesis - the breast cancer prevention Charity based in Manchester see: http://www.genesisuk.org/pages/About-the-walk.html - and I am not stiff or aching at all! How amazing is that? Especially as I have felt so unfit since treatment, despite all my best efforts with regular exercise and healthy eating during and following treatment I still feel 'out of condition'. So yes I am chuffed and feeling a bit smug this morning.
It is incredible what we can achieve and it may seem small but as the saying goes every little helps... so I would urge anyone out there to not give up on exercise and have a go at a new challenge once in awhile, I promise that you will feel amazing!

Green tea

2008-04-14T22:55:00.000+01:00

I don't know about you but while I was having chemotherapy, apart from feeling ill and having severe nausea, I felt out of control altogether. Something that really helped me came from a work colleague who had had breast cancer some years ago she mentioned the Jane Plant programme - a way of eating and avoiding certain things to enhance your health during treatment. In fact, I bought her book and I loved it... I didn't do all the things that were suggested but tried some of them and one was drinking green tea! Yes that's right green tea... it really did work for me and reduced my nausea and improved my feeling of well being. So simple but so good! Try it and see.

Enjoying the moment

2008-04-07T10:49:00.000+01:00

If there is one thing that I have learnt more recently it is to enjoy the moment!.
The sunshine, the snow, spring flowers, good company, a good laugh and a tasty meal and so on, enjoy and bask in the pleasure it gives you (and others).
How we respond to the here and now is in our control, we own our own behaviour and choose our own responses to situations, people and conversations.. it is important to remember this. While the world around us changes and our own health is not always straightforward, things do go wrong - but learning to enjoy the moment and saviour the simple things can really help. It can boost your energy stores, lighten your mind and give you inner peace. Believe me when all around feels dreadful and the future seems grim..... just take stock and think about the simple things and embrace the moment.
A new skill for me is to deposit in my 'mind bank' wonderful memories like a view, experiences and thoughts for which I then recall and relive whenever I choose.... it is amazing how it makes me feel and it is not hard. You own these wonderful memories and so use them at your pleasure.

One click can help!

2008-04-02T14:17:00.000+01:00

A favour to ask, it only takes a minute....
Please tell ten friends to tell ten today!
The Breast Cancer site is having trouble getting enough people to click on their site daily to meet their quota of donating at least one free mammogram a day to an underprivileged woman. It takes less than a minute to go to their site and click on 'donating a mammogram' for free (pink window in the middle). This doesn't cost you a thing. Their corporate sponsors/advertisers use the number of daily visits to donate mammogram in exchange for advertising.
Here's the web site! Pass it along to people you know. http://www.thebreastcancersite.com/

PLEASE TELL 10 FRIENDS TO TELL 10

News - check this out

2008-03-29T23:17:00.000Z

http://www.fhsc.salford.ac.uk/newsitem.php?id=410

Energy levels

2008-03-29T22:40:00.000Z

I have been both amazed and frustrated by my energy levels since treatment finished nearly a year ago! The pendulum has been so variable, some days I have felt buzzing with energy and others absolutely flat. It has irritated me at times to have experienced such a lack of motivation and unable to face doing things, like a yo yo I have been up and down. Nothing really prepared me for this, I thought that once treatment was all over with I would have boundless energy and my usual passion to face anything and everything would return.... well this aspiration did not pan out quite like that. A times I have struggled with the simplest of tasks, like driving and doing things alone. My confidence hit rock bottom when I first went back to work and that was a real big shock. But you know I have been inspired by others and whilst it is a cliche to say that being aware that some people are worse off than you this thought can really help. Or conversely knowing that others have survived and moved on with their lives also helps. For example I found Kylie's story very comforting and whilst our lives are totally polarised, in fact we shared something that many of us share - hope and strength. The energy if takes to handle the treatment is huge and so when its all over be kind, be patient and give yourself permission to relax! Energy comes from a range of sources .... take it easy when you can and enjoy the inner peace

Fatigue

2008-03-25T09:11:00.000Z

A few months ago I was given a booklet called 'Coping with fatigue' printed by cancerbackup, what a useful book this is! My treatment finished in April 2007 and it was a surprise to me when I started to feel like I had no energy, unable to concentrate, experienced sleepless nights and had difficulty remembering things and so on. I spoke to my GP and occupational health doctor about these feelings and physical symptons, they simply gave a blanket response 'after all you have been through it will take time', which is a supportive comment on the one hand but conversely it is rather non-specific. After several months of trying to manage and telling myself to 'get a grip' I discovered the cancerbackup booklet. What a relief it was to read about the specific issues and effects. I felt normal and ordinary....... in terms of how I was feeling and the things I was experiencing. Having information in black and white and written by people in 'the know' was reassuring and a real comfort to me. I would urge people to get hold of a copy, it may not help everyone but it could help some survivors and their families. Visit cancerbackup at http://www.cancerbackup.org/

Evening walk for breast cancer prevention

2008-03-20T16:53:00.000Z

On the 4th of May in Manchester there is a night time walk of 10km to rasie money and awareness for Genesis, breast cancer prevention see: www.genesisuk.org
I have put a small team together, we are the FAB4, if you see us wave and smile!!

Turning a corner

2008-03-18T21:00:00.000Z

Today I visited the physiotherapist, for whom I have been seeing for about 8 months now due to shoulder and arm problems, she was thrilled with my progress. She even said that quite possibly at my next appointment she may well be discharging me!! I am delighted at the prospect not because she isn't a nice person but I am sick of hospital appointments and constant reminders of the fact that I had cancer. It was this time last year that I was in the middle of radiotherapy treatment.
In fact the pain and loss of movement in my shoulder, chest and arm started quite soon into this part of my treatment. I remember telling the staff about it and receiving a cool response from the staff, they inferred that the pain and impaired movement was due to surgery rather than radiotherapy. I knew this was not the case and I pushed for a referral to a physiotherapy class. At the class we were taught how to care for our arm and a set of exercises were promoted. Thank goodness I made this contact and received good information, as time went by the pain and movement got much worse and so I decided to self refer myself for a medical opinion. I did this through the breast care nurse and oncologist. As a result I was given an appointment to a pain management clinic and then physiotherapy. I have worked hard with the specific exercises and determination to improve by going to yoga and eating healthy. Improvement was my goal.
It makes me wonder how many women suffer shoulder pain and reduced movements. Do they suffer in silence or are they proactive like me and seek help to improve matters? I don't think we know. I suspect many women put up with stuff and think that this is their lot. I would love to hear from anyone who has experienced post-treatment issues.. do get in touch and comment.

At last

2008-03-17T09:44:00.000Z

Following my treatment for breast cancer and return to work in May 2007, I have at last found a wonderful opportunity to help breast cancer care. I have become a 'voice' of breast cancer see: http://www.breastcancercare.org.uk/content.php?page_id=11459
This is a voluntary role and my preferred area of work is media. I feel passionate about some of the hidden stuff as well as the obvious in relation to breast cancer. Many things along the journey overwhlem you and how you handle the issues plays a crtical part in ones recovery. I have set up this blog as a way to share some of my tips, thoughts and by using my voice hope to help others. At last I feel brave enough to share on the www!!!